Editorial: World leaders unite to embed social participation in health systems

For the first time in the 76-year history of the World Health Organization, leaders from 194 countries have come out in favor of integrating social participation as a key function of health systems. This resolution is the first to recognize the essential role of social participation in tackling major health challenges, such as access for all, climate change and health inequalities.

July, 2024

Palliative Care & Social Practice

How does community engagement evolve in different compassionate community contexts? A longitudinal comparative ethnographic research protocol

Compassionate communities build on health promoting palliative care that aims to address gaps in access, quality, and continuity of care in the context of dying, death, loss, and grief. While community engagement is a core principle of public health palliative care, it has received little attention in empirical studies of compassionate communities.

April, 2023

Evaluation framework for Patient and Public Engagement (PPE) in research

Evaluation framework for Patient and Public Engagement (PPE) in research

The Learning Together Evaluation framework for Patient and Public Engagement (PPE) in research is a national adaptable tool, which can be used to plan and to evaluate patient engagement before, during and at the end of a project.

Health Expectations: Volume 27, Issue 2

Engaging with peers to integrate community care: Knowledge synthesis and conceptual map

This article seeks to disentangle the conceptual multiplicity of peer support, presenting a conceptual map based on a 3-year knowledge synthesis project involving peers and programme stakeholders in Canada, and international scientific and grey literature.

April, 2024

Health Expectations

The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities

The Ecology of Engagement offers a common sketch to foster dialogue on engagement across health ecosystems. The model can drive cooperative efforts with patients and communities on health, equity, resilience and sustainability.

August, 2022


Community initiative co-led with patients could improve care for people with complex health and social needs.

Canadian family physician Antoine Boivin and patient partner Ghislaine Rouly describe how they work together with community partners to provide holistic care for patients with challenging social and medical problems

February, 2020

Book Chapters

    1. Boivin A, Flora L, Dumez V, L’Espérance A, Berkesse A, Gauvin FP. Co-construire la santé en partenariat avec les patients et le public : historique, approche et impacts du « modèle de Montréal ”. Chapitre dans “La participation du public”. Editeurs: Christian Hervé et Michelle Stanton Jean. Editions Dalloz. 2017

Boivin 2017 Co-construire la santé

Articles published with peer review (selected)

1. Boivin A, Richards T, Forsythe L, Grégoire A, L’Espérance A, Abelson J, Carman KL. Evaluating patient and public involvement in research. British Medical Journal (BMJ) 2018;363:k5147 doi: 10.1136/bmj.k5147.

Boivin 2018 Getting serious about engagement evaluation

3. Boivin A, L’Espérance A, Gauvin FP, Dumez V, Macaulay AC, Lehoux P, Abelson J. Patient and public engagement in research and health system decision making: A systematic review of evaluation tools. Health Expect. 2018 Jul 30. (

4. Boivin A, Dumez V, Fancott C, L’Espérance A. Growing a healthy ecosystem for patient and citizen partnerships. Healthcare quarterly. 2018 Dec;21(SP):73-82. doi: 10.12927/hcq.2018.25634.

5. Boivin A.  From Craft to Reflective Art and Science; Comment on “Metrics and Evaluation Tools for Patient Engagement in Healthcare Organization- and System-Level Decision-Making: A Systematic Review”. International Journal of Health Policy and Management. 2018; 8(2), 124-127.

7. Lehoux P, Roncarolo F, Silva HP, Boivin A, Denis JL, Hébert R. What health system challenges should responsible innovation in health address? Insights from an international scoping review. Int J Health Policy Manag 2019, 8(2), 63–75. doi 10.15171/ijhpm.2018.110

8. Kimminau KS, Jernigan C, LeMaster J, Aaronson LS, Christopher M, Ahmed S, Boivin A et al. (2018). Patient vs. Community Engagement: Emerging Issues. Med Care, 56 Suppl 10 Suppl 1, S53–S57.

9. Chao YS, Scutari M, Chen TS, Wu CJ, Durand M, Boivin A. (2018). A network perspective of engaging patients in specialist and chronic illness care: The 2014 International Health Policy Survey. PLoS One, 13(8), e0201355. doi:10.1371/journal.pone.0201355. Epub: 2018/08/14.

10. Archambault PM, McGavin C, Dainty K, McLeod S, Vaillancourt C, Lee JS, Perry JJ, Gauvin FP, Boivin A. (2018). Recommendations for patient engagement in patient-oriented emergency medicine research. CJEM, 20(3), 435-442. doi:10.1017/cem.2018.370

11. Roncarolo F, Boivin A, Denis JL, Hébert R, Lehoux P. What do we know about the needs and challenges of health systems?  A scoping review of the international literature. BMC Health Services Research. 2017 Sep 8;17(1):636. doi: 10.1186/s12913-017-2585-5.

12. Chao YS, Wu HT, Scutari M, Chen TS, Wu CJ, Durand M, Boivin A. A network perspective on patient experiences and health status: the Medical Expenditure Panel Survey 2004 to 2011. BMC Health Services Research 2017 Aug 22;17(1):579. doi: 10.1186/s12913-017-2496-5.

13. Katz A, Herpai N, Smith G, Aubrey-Bassler K, Breton M, Boivin A, Hogg W, Miedema B, Pang J, Wodchis WP, Wong ST. Alignment of Canadian Primary Care With the Patient Medical Home Model: A QUALICO-PC Study. Annals of Family Medicine 2017;15:230-236

14. Pomey MP, Dumez V, Boivin A, Hihat H, Lebel P. Le partenariat de soins et de services: une voix/voie pour donner sens à la Loi 10? Le point en administration de la santé (2015). 11(1), 38-42

15. Wong ST, Chau L, Hogg W, Teare GF, Miedema B, Breton M, Aubrey K, Francoeur D, Katz A, Burge F, Boivin A, Cooke T and Wodchis W. An international cross-sectional survey, Quality and Costs of Primary Care (QUALICOPC): lessons learned in recruitment and data collection in primary care across Canada. BMC Family Practice (2015) 16:20 DOI 10.1186/s12875-015-0236-7

16. Boivin A, Marcoux I, Garnon G, Lehoux P, Mays N, Premont MC, et al. Comparing end-of-life practices in different policy contexts: a scoping review. Journal of health services research & policy. 2015;20(2):115-23

19. Boivin A, Marcoux I, Garnon G, van Leeuwen E, Mays N, Pineault R, Prémont MC, Lehoux P. Independent research is needed to inform end-of-life policy choices. Canadian Medical Association Journal [Letter]. Canadian Medical Association Journal, 2014;186(3):213.

20. Van der Weijden T, Elwyn G, Knaapen L, Pieterse A, Stiggelbout A, Boivin A, Burgers J, Faber M, Koelewijn M. How can clinical practice guidelines be adapted to facilitate shared decision making? A qualitative key informant study. BMJ Qual Saf, 2013;0:1–9.

21. Van der Weijden T, Boivin A, Burgers J, Schunemann HJ, Elwyn G. Clinical practice guidelines and patient decision aids. An inevitable relationship. J Clin Epidemiol, 2012; 65(6):584-9.

22. Légaré F, Boivin A, Gagnon S, Robitaille H. Patient and public involvement in the development and implementation of clinical practice guidelines: what do developers say? Int J Pers Cent Med, 2012;2(4):862-9.

23. Légaré F, Boivin A, van der Weijden T, Pakenham C, Burgers J, Légaré J, St-Jacques S, Gagnon S. Patient and Public Involvement in Clinical Practice Guidelines: A Knowledge Synthesis of Existing Programs. Med Decis Making, 2011;31(6):E45-74.

24. Boivin A, Lehoux P, Lacombe R, Lacasse A, Burgers J, Grol R. Target for Improvement: A cluster randomized trial of public involvement in quality indicator prioritization (intervention development and study protocol). Implementation Science. 2011;6:45.

25. Boivin A, Currie K, Fervers B, Gracia J, James M, Marshall C, Sakala C, Strid J, Thomas V, van der Weijden T, Grol R, Burgers J. on behalf of the Guideline International Network Patient and Public Involvement Working Group. Patient and public involvement in guidelines: international experiences and future perspectives. Qual Saf Health Care, 2010;19:e22.

26. Facey K, Boivin A, Gracia J, Hansen H, Lo Scalzo A, Mossman J, Single A, on behalf of the Health Technology Assessment International Special Interest Group on Patient and Citizen Involvement. Patients’ perspectives in HTA: a route to robust evidence and fair deliberation. International Journal of Technology Assessment in Health Care, 2010 Jul;26(3):334-40.

27. van der Weijden T, Légaré F, Boivin A, Burgers J, Van Veenendaal H, Stiggelbout AM, Faber M, Elwyn G. How to integrate individual patient values and preferences in clinical practice guidelines? A research protocol. Implementation Science, 2010;5:10.

28. Boivin A, Green J, van der Meulen J, Légaré F, Nolte E. Why consider patients’ preferences? A discourse analysis of clinical practice guideline developers. Medical Care, 2009;47:908-15.

29. Lehoux P, Daudelin G, Demers-Payette O, Boivin A. Fostering deliberations about health innovation: What do we want to know from publics? Soc Sci Med, 2009;68:2002-9.

30. Légaré F, Boivin A, van der Weijden T, Pakenham C, Tapp S, Burgers J. A knowledge synthesis of patient and public involvement in clinical practice guidelines: study protocol. Implement Sci, 2009;4:30. Available online at: (Accessed June 19, 2009)

31. Boivin A, Légaré F, Lehoux P. Decision technologies as normative instruments: Exposing the values within. Patient Educ Couns, 2008;73:426-30.

32. Boivin A, Légaré F, Gagnon MP. Competing norms: Canadian rural family physicians’ perception of clinical practice guidelines and shared decision-making. Journal of Health Services Research and Policy, 2008;13(2):79-84.

33. Boivin A, Légaré F. Public involvement in guideline development [letter]. CMAJ, 2007;176:1308-9.

Reports (selected)


3. David G, Grégoire A, Boivin A, Dumez V. Principes directeurs : dédommagement financier pour la recherche en partenariat avec les patients et le public. Unité SOUTIEN SRAP-Québec. 11 pages. 2018.


4. Guideline International Network Patient and Public Involvement Working Group. G-I-N PUBLIC Toolkit: Patient and Public Involvement in Guidelines. Edited by: Davino C, Boivin A, Knaapen L, Shaefer C, van der Weijden T. Guideline International Network; 2012. 88 pages. Available from:

G-I-N PUBLIC 2012 G-I-N PUBLIC Toolkit Patient and Public Involvement in Guidelines

5. Boivin A, Dumez V, Garnon, G, Loignon C, Gagnon MP, Bush P, Ganache I, Laverdière F, Fournier M, Menear M, Légaré J, Caron-Malenfant J. Soutenir la recherche en partenariat avec les patients et le public : Stratégie d’engagement pour l’unité de SOUTIEN-SRAP Québec. Unité de soutien à la recherche axée sur le patient du Québec. Mars 2015. 22 pages.

6. Ferrera V, Boivin A. Évaluation d’implantation du programme autogestion des soins pour les personnes atteintes de maladies chroniques et leurs proches en Abitibi-Témiscamingue. Agence de la santé et des services sociaux de l’Abitibi-Témiscamingue. Rouyn-Noranda. 2012. 67 pages.

7. Boivin A. Systematic review of the interaction effect of patients’ characteristics on the effectiveness of preventive clinical practice guideline implementation strategies. London: London School of Hygiene and Tropical Medicine; 2007.

Press and media interviews (selected)

1. Boivin A. La science du partenariat avec les patients et le public [The Science of Partnering with Patients and the Public]. Program: Un partenaire à votre santé [A partner for your health]. Radio VM. October 2020. Recording available (in French only) by clicking on this link. More information on the program (in French only) at:

3. Pelletier M. Soigner avec des patients: C’est possible? Le Bulletin: Société de sclérose systémique (sclérodermie) du Québec Inc. Automne-hiver 2018-2019 18-19

2018 Bulletin sclerodermie Québec (Communauté soignante)

CHUM Magasine

4. Boivin A, Grégoire A. Évaluer rigoureusement les pratiques d’engagement des patients et du public. CHUMAGAZINE. 7 décembre 2018.

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