In a caring community, patients, clinicians, decision-makers and citizens care together for members of their community, mobilizing each other’s skills. The Chair co-directs this social innovation project in collaboration with several actors in the Center-Sud district of Montreal.
The compassionate community aims to improve the quality of life of people at the end of life and their loved ones by promoting collaboration between community and health system actors. The Chair is leading a five-year action research project on the design, implementation and evaluation of two pilot compassionate communities in Quebec.
In collaboration with the Institut de cardiologie de Montréal, the Chair is conducting a pilot randomized trial on the impact of integrating patient partners into the clinical follow-up of people with chronic diseases.
The Quebec Strategy for Patient-Oriented Research (SPOR) Support Unit aims to support decision making in a learning health system by drawing on research and the expertise of patients, professionals and managers. Antoine Boivin, in collaboration with the Chair’s team, co-leads the scientific component of the Unit’s Partnership Axis, supporting methodological and scientific innovations in the field. The SSA Québec SPOR Support Unit thus offers a high-level platform to support research conducted in partnership between the population, research, care, social services and management.
The pandemic disproportionately affects people experiencing homelessness. The Chair and its partners are co-leading an action research project on the integration of a peer helper with lived experience of homelessness into a primary care team.
The Chair and its partners are co-leading a Participatory Action Research (PAR) to advance knowledge on inclusive partnerships with diverse children and families, to support capacity-building for future partnerships with children and families in pediatric cancer research and to engage with CPCC leadership to support research partnerships with children and families.
The mission of the Centre of Excellence on Partnership with Patients and the Public (CEPPP) is to develop the science and practice of partnering with patients and the public to improve the healthcare system and overall population health. The Center of Excellence was co-founded in 2016 by the Canada Research Chair in Partnership with Patients and Communities (CRCHUM) and the Direction collaboration et partenariat patient (Faculty of Medicine, Université de Montréal). The Chair particularly supports the Center’s scientific activities (eg. database and research infrastructures, monitoring and scientific animation, training in partnership research).
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What is citizen science?
Vincent Dumez, Patient Partner and Co-Director of the Centre of Excellence on Partnerships with Patients and the Public, and Dr. Antoine Boivin, Physician-Scientist and Co-Director of the Canada Research Chair on Partnerships with Patients and Communities, show us the impact of citizen science, with concrete examples from Quebec, as well as the success factors of these initiatives. (in French)
Survival of the Kindest (Podcast)
Dr. Antoine Boivin and Ghislaine Rouly, co-directors of the Canada Research Chair on Partnerships with Patients and Communities, are Dr. Julien Abel’s guests to talk about standardization, depersonalization and the impact on peoples health and wellness.
Dr. Antoine Boivin is invited to the show “À la table de Kim“. With Régine Laurent, Mélodie Roukoz, Noémie Mercier and Philippe Desrosiers, the episode is about listening. (in French)
The art of listening
Dr. Antoine Boivin and Professor of Urban Planning Shin Koseki are masters in the art of listening. Both the patient and the citizen are “encyclopedias of knowledge”, partners in better care and better planning for the city. In this episode, Kim Thúy and her guests weave tangible links between urban planning and health and contemplate the richness created by a multiplicity of viewpoints. (in French)
Patients know the solutions
Interview with Dr. Antoine Boivin and Philippe-Vincent Foisy on the importance of listening to the solutions implemented by patients themselves to improve health. (in French)
Qub Radio – November 10, 2022
Stories of ordinary care at the border of two realities
The care we offer is very simple. There is nothing heroic about it. (in French)
La Presse – Published on November 9, 2022
Citizen science: opening the door to science
When a citizen participates in science projects, it has many benefits, starting with bringing the citizen closer to science. And while the most talked about projects are in the environment, there are also projects in the social sciences and health. In the latter cases, it opens the door to marginalized citizens or patients and can create a true “caring community”. (in French)
Agence Science-Presse – November 28, 2019