Chairholder of the Canada Research Chair in Patient and Public Partnership
Antoine Boivin is a practicing physician and associate professor at Université de Montréal Department of Family Medicine. After his medical training in Canada, he completed his MSc and PhD in health services research in the United Kingdom and the Netherlands. His research focuses on patient and public engagement in community care, health system improvement, research and policy. He led the first randomized trial of patient engagement in priority setting. He is co-director of the patient and public partnership strategy for the Quebec SUPPORT unit and co-founder of the Center of Excellence on Partnership with Patients and the Public.
Geneviève Castonguay is the scientific manager of the Canada Research Chair in Patient and Public Partnership. After completing a PhD in community psychology (UQAM), she coordinated numerous public health research projects as a research associate (Institut national de la recherche scientifique, McGill University). In particular, she has conducted projects on the adjustment of older people in institutional settings and the relationship of children with their neighbourhood. She has also coordinated an epidemiological program based on the life course approach and projects to improve access to oral health care across Canada. She has acquired expertise in qualitative, quantitative and mixed methods, as well as in research administration. In 2019, she joins the Chair to put to good use her public health research experience, her deep interest in projects conducted in partnership with the community, and to continue to learn from all those with whom she has the chance to cross paths.
Julie Hupé works as a Project Manager for the Canada Research Chair on partnerships with patients and the public, where she is involved in two projects: the Caring Community and the Compassionate Community. She is interested in the impact of positive social determinants in different contexts, such as immigration, physical and psychological rehabilitation, and physical and mental health. Through her professional experience in organizations encouraging cooperation among different actors promoting social development, Julie has developed a real passion for citizen and collective engagement, local development, as well as for the process of co-building projects with and for communities.
Catherine Purenne is an Administrative Coordinator at the CHUM Research Center. A graduate in education from Université de Montreal, she has over the years coordinated numerous research projects and scientific activities in family medicine (CRCHUM) and community psychology (UQAM). Since 2014, she has been using her expertise in managing and coordinating research projects at CR-CHUM’s Carrefour de l’Innovation et l’évaluation en santé. She joined the CEPPP when it was created in 2015. In 2018 she completed a training course in management of philanthropy at the University of Montreal.
Ghislaine Rouly has been a patient since birth, living with two orphan genetic diseases. She has always been in the health field and over the years has acquired a unique level of experiential knowledge. Since 2012, at the Faculty of Medicine of the Université de Montréal, she has been working with the team of the Direction collaboration partenariat patient (DCPP) where patient partnership has become her passion. She participates in mentoring, ethics courses, the three CSS courses on collaborative practices and also sits on the expert patient committee. In collaboration with Dr. Antoine Boivin, she is working on several research projects, including End-of-Life Care, Medical Aid to Die, the Montreal Heart Institute (MHI), “Caring Community” and “Compassionate Communities”. For more than 45 years, Ghislaine has been involved in end-of-life support and sits on the Medical Aid to Die’s governance committees and on the Interdisciplinary Support Group (ISG) at the CHUM and CIUSSS in the Centre-Sud and Nord-de-l’Île de Montréal. Her involvement earned her the Fondation du CHUM’s volunteer award in palliative care in 2009. She is also the president of the Association Les Ami(e)s du Patient at the CHUM and Notre-Dame. Since 2016, Ghislaine works as a patient partner with the Centre of Excellence on Partnership with Patients and the Public (CEPPP).
Research Assistant – Compassionate communities and Caring community
Emilie Warren is the research assistant at the Canada Research Chair on partnerships with patients and the public. With a Master’s degree in Public Health specializing in Health Promotion from the École de santé publique de l’Université de Montréal and a Bachelor’s degree in Psychology from the Université Laval, she had the opportunity to analyze various public health issues affecting the participation of patients and citizens. Her experience at the West Island Association for the Intellectually Handicapped in 2016 and at the Centre de santé et de consultation psychologique from the Université de Montréal in 2018 has allowed her to develop her skills in planning, implementation and evaluation of public health programs.
Compassionate Communities Project Manager
Agustina Gancia is the evaluation coordinator for the Canada Research Chair on partnerships with patients and the public. With a background in research and health promotion, she has developed an interest in evaluating public health interventions. In particular, she is interested in the partnerships created as part of these initiatives. Her PhD, completed in 2017, focused on evaluating a childhood obesity prevention program in South Australia. As a result, Agustina has acquired expertise in research methods in evaluation, public health program planning, partnership analysis and their impact on organizational processes.
Nadia O’Brien is a post-doctoral fellow at the Canada Research Chair in Patient and Public Partnership. In July 2019 she is a PhD student at McGill University in the department of Family Medicine. Her doctoral research was conducted with the Canadian HIV Women’s Sexual and Reproductive Health Cohort Study (CHIWOS), the largest community-based participatory study with this population in Canada. Nadia’s interest in community-led interventions and participatory research were fostered through work with sex-worker collectives in India, community-based organizations in Namibia, and with clinical and community partners of the BC Centre for Excellence in HIV/AIDS in Vancouver. She is a graduate of the Master of Public Health from Simon Fraser University, and of Medical Anthropology from the University of Toronto. Her work continues to focus on health, marginalized populations, social inequalities and community engagement.
Mathieu Bouchard has been collaborating with the the Center of Excellence on Partnership with Patients and the Public (CEPPP) and its founders for several years now. He initially acted as patient partner in medical training, and then increasingly in participatory research projects related to organizational governance. He completed in 2019 a PhD at the Management Department of HEC Montréal. His thesis, based on a comparative ethnography of three patient movements in mental health care, analyzed client action in professionalized fields. The jury recommended this thesis for the prize of the best doctoral thesis of the HEC.
Before doctoral studies, Mathieu has worked for several years in asset management for large pension plans. He holds an MBA and a Chartered Financial Analyst (CFA) designation. Between finance and doctorate, he has lived a profound meaning crisis and experienced mental health care, which has nourished his interest in mutual aid groups and peer work. Mathieu is currently applying for postdoctoral fellowship with CEPPP to study the collective construction of knowledge in health-related experiential communities.
MSc student – Graduated
Marie-Pierre Codsi is a family physician, graduated in 2016 from Université de Montréal. She practices at the Notre-Dame family medicine clinic in Montreal where she conducts clinical and supervision activities for family medicine students and residents. She is a professor in clinical teaching at the Department of Family Medicine and Emergency Medicine at Université de Montréal. In collaboration with the Chair, she completed in 2019, with exceptional distinction, a Master’s of Research in Pedagogy of Medical Sciences on the impact of partnership with patients on the identity of healthcare professionals.